Life goes on in a similar vein

My immunoglobulin infusions have continued and my health is still improving.

The first infusion brought a dramatic improvement, The subsequent ones, with a lot less of the magic ingredient, have brought minor improvements in touch and temperature sensation.

My sense of touch is now good in my hands, but my feet are still a bit dead. I’m still getting some burning/tingling sensations, mostly in my legs, but no more pains in my hands and feet.

I visited my specialist this week. She stuck pins in my feet and hands and found that my feet were still a bit dead. I still have no reflexes, no matter how hard she hits me with her rubber hammer. My present programme has me in hospital once a month for infusions until March. She now thinks I should continue with infusions after that, possible changing to one every six weeks.

Gliding and flying the tow planes is still good fun, and I’m back golfing. But a day out on the gliding field or the golf course is leaving me very tired and needing a day of recovery. This could be for a variety of reasons: a) neuropathy b) the wearing-off effect of the treatment* c) old age decline d) laziness. I think d) is the most likely!

*One scholarly article describes how three weeks after an infusion, the effect can wear off, bringing “a decrease in quality of life, clinically manifesting as general malaise, fatigue, arthralgia (joint pain), and myalgias (muscle pain).